Thread: Menieres disease Tinnitus

Hi everyone, last week I finally found out the constant ear noise , loss of hearing vertigo is Menieres disease(MD) I had been told by the specialist in Feb this year I had further scarring in the ear and to lower salt and use Serc tablets when I have vertigo issues and go back 12months restest hearing.He never told me it was MD then back at my family dr she also never told me it was MD.When it started last year in Sept I would have a vertigo rush for no reason and if I was standing suddenly fall or hit the wall, very scarey feeling.In Jan this year after tests MRI on brain a simple blod test showed my iron levels critically low.So all this time I assume it was the iron.The vertigo settles in March then in July bam! vertigo, this time I immediatly got iron tested and found they were normal, so being totally puzzled went a different doctor in same centre and asked what does specialist report say.When he read out MD I was annoyed that I hadnt been told and depressed because its got no cure and is degenerative.Anyway I have had hissing in the ears for 20years when it started I was told an allergic reaction caused swelling in ear and later a scar,that was the same specialist I seen this time, so I now wonder have I had MD start 20yrs ago?hopefully itll be 20yrs before it gets worse but its pretty bad right now Serc dont seem to help this time and not only is there a hiss sound i now have a low hum going on and ears feel full most days. Any ideas on what can help?any support meetings in the south Sydney areas?I dont drink dont smoke and never have caffeine and already was on low salt.So what to do?

my uncle has this disease cronically. it sounds as though u need to see a specialist again. i know there is surgery but it can make you lose all hearing. (my BF is a hearing specialist) my uncle takes medication and has gone into remission several times but still gets very sick. he has attacks where he vomits non stop, very bad vertigo etc. from what ive heard this is a very unfair and hard to manage disease. the only thing i can think of is cutting out all salt and looking into the newer treatments.

try another doctor and do some of your own research into the best specialists, im sure they will be in sydney. there must be some better answers for you, or atleast some signposts to support groups, you would think a doctor would have helped you out here but i guess they just dont know enough about it or the toll that it takes emotionally. they tried to tell my uncle it was MS for ages!

did u play contact sports when u were younger? apparantly alot of boxers or football players end up with it. football and getting into fights as a young man is what did it for my uncle.

good luck xx