Moms been in hospital for 10 days

**scared87** · 09-16-2011 07:36 AM

Hi everyone.
I haven't written in a few days, my internet connection has been terrible.

Well here is an update on my mom.

She is no longer on sedation.
She got transfered to a different hospital, a smaller one.

She had to have some blood given to her, because she lost a lot when they were doing tests, by drawing blood. So they had to give her someone elses blood, and I am scared It kind of scares me I don't want her to catch aids or something, you know what I mean?

She has lost SOOO much weight It's so scary.

Her eyes look so BIG now. Why????

She doesn't have an appetite either, I am so worried about her I cant take this anymore. Shes like 49 years old, and she is put in a physical therapy place I am so sad, I don't know what to do

I just miss her so much and I want her home. She can't walk because she is so weak, because of her muscle disorder.

I just miss her so much, and I want her home.I cant stand seeing her like this.

Her voice is so low because she is so weak. I don't like this

I miss her confident voice!!

( Ugh. I just love my mom and miss her so much, but I am very HAPPY that she is no longer sedated and on a breathing tube.

She also has these 2 huge red sores on the sides of her mouth.

She is also no longer on the IV bags.

She had a rare muscle disease in 2000 (polymyositis), and then she got histoplasmosis this month, the histoplasmosis turned into SEPSIS ....

So a lot of things are going on with her. I just cant watch my mother get old anymore, I just cant take this feeling, its so depressing.

Thank you so much everyone for your kind stories, I really enjoyed reading them it made me realize I am not the only one who has went through this.

I wish everyone a speedy recovery.

I also was wondering after you guys left the hosptial, how long did it take for you to recover? And what steps did you guys take to recover? My mom doesnt feel like eating, and she has lost A LOT of weight, and she looks scary to me ? Is this temporary? What other side effects do these patients have? Any information will help, I just always feel sad going to the hospital, because her voice is so low..is this because of sedation? or because of her muscle disorder?

She cant walk, she cant stand for a long peroid of time... and the doctor stopped her methotraxtate and this other medicine that starts with a *C* i dont remember the name of it....

I just dont know what to expect anymore, I just cant take this!!!! She was doing sooo good with her polymyositis until she got this nasty histoplasmosis, that turned into sepsis. ugh this is just frusterating.

**CHANDLERS WISH** · 09-16-2011 04:25 PM

scared it sounds to me, that they have crossed the biggest hurdle with her, she is out of intensive care, and they are working at making her stronger because she was probably fed by a drip, the amount of weight she would have lost would show in her face sweetheart, that is why her eyes are bigger... It honestly sounds like she is now going through re-hab, she beat it, and they are now re-gaining her strength, as muscles do deteriorate when not used, I had an injury quite a few years ago, they the physicians took too long to work with re-gaining my strength, like 3 months and now I have weakness which causes alot of pain if I over use my shoulders through writing or typing, so it's important what they are doing, strengthening her muscles...

Be beside her, her voice is low because she is still weak from being so ill...

Hugs

**BabyGirl** · 09-16-2011 07:06 PM

Scared..
You are a very Strong young woman,these are trying times, but you are getting Stronger, so is your Mom. Day by Day and it takes time, for both of you. She is lucky to have a Daughter like you. To help her when she comes home, and even now by all that you do do.
.

You may be scared, I'm sure she is too and having you love her so much is probably what has gotten her thru Deaths Door. She seems Past the worst of it, Understand there is a long way to go, but not a Journey she cannot Make without your Love and Support.

It seems you have asked questions, gotten some Answers, studied a bit on her Illness/ Diseases. That in it's self has empowered you . Having knowledge is tantamount to Battling Fear of the Unknown.

Now, Realize she is still here, You still have you Mom, alot of People don't have theirs anymore, so, you can still be Fearful and wish for her 100% health back ( as she was before this Illness ) .

But understand that will take time. To help a Bit ( I Hope ) May 2009, I contracted the Swine Flu, weighed 124 lbs when I caught it, 10 days later , I was at 104 lbs. Was weak and truly felt like just giving up. My 2 kids here at home ( adults ) also had the Piggy Flu, they were younger and More Resilient.

They Pitched in, took way over their Fair Share of things around the house, so I could still work, come home Exhausted and just go to bed. It took almost 3 months before I could go do anything, other than stop at the store after work for Milk.

Slowly, as I got Strength and weight back, I took over my " Job " as Mother, Shopping and even my Own Laundry. Now 2 plus years later, I am once again at my " Normal " weight, plus 3 lbs. Woo Hoo.

Honey, without those two , then 19 and 22, I would never have been as I am Now.

So Give your Best, Do Your Best, Don't Give up. I Thank My Best Friends ( My Kids ) everyday for being there, Picking up the Extra's, letting me be Tired when I was Tired, encouraging me to get or go out with them or by myself for things.

It was Rough on them , but made them Stronger, more Independent. Learning how to handle things when I am Really Gone !!

I now work over 40 hours a week, most weeks, Son works close to that Daughter still in College, living at home ( both ). And what is Amazing is I can come home, up 3 flights of Stairs. Get in the Door and they Absolutely Know...

" Mom Whats For Dinner or Mom What do You Want for Dinner ? " Lol

And Hopefully I will Never Have the " Mom , Are You Burning Dinner, That Dang WH site got your Involved again ?

**jns** · 09-16-2011 09:01 PM

scared, it takes a long time to come back from a serious illness like this. It could take months or it could take a year or more. Be patient. A calm attitude by you and the others will keep your mother from worrying too much. Express your love for your mother by saying it. Listen carefully to the instructions that the doctors give you. Your mother may have to be careful about things, even such things as dust or flowers could be harmful. Quiz the doctors on restrictions.

The mouth sores could be due to a breathing tube. The loss of appetite may be due to her stomach shrinking while she was very sick. It may take a while for her appetite to come back. Her eyes probably look big due to loss of fat under the skin of her face.