Originally Posted by
tae
Hello,
I've already had a hysterectomy, however I'm still very curious about it and I wanted to share my experience with others.
My story is...
I'm 22 yrs old and a mother to four beautiful children. When I was pregnant with my second child I was told that I had a abnormal pap smear and that I had pre-cervical cancer. I never thought much of it. I was also told that I had a cyst in my right ovary. A calcoscopy was performed and was told that the cells weren't growing. So basically all I knew was that I had HPV and some pre-cancerous cells were forming. I had my son, the pregnancy was easy. I had 2 more pregnancies after him, and all were successful. Before my last son was conceived I had a cervical biopsy, Results came back mild. But as I was gonna get treated for the pre cancerous cells. The pregnancy was discovered. I ended up with a emergency c-section due to placenta abruptia. The cause is unknown. As soon as I was stitched up. (bikini cut was what I wanted) The blood just wouldn't stop flowing. I was dying and lost over 1,000 cc of blood. I had a blood transfusion and an hour after my c-section. I was under the knife having my uterus removed. My ovaries, fallopian tubes, and cervix were left in place. I was 20 yrs old at the time. After all that, I was in terrible pain, I was cut twice. Vertically and horizontally. So you could imagine the DOUBLE pain I was feeling. It was horrible. I would never wish this pain on anyone. Anyway, I recovered and went about my life with no complications. It wasn't till my next pap smear that I started to receive treatment for the pre cancerous cells in my cervix. I would see the dr. every week had have the cells burned. It was painful and irritating. I gave up, tired of suffering, I stopped going to my appts. A year passed and one day, while showering I placed a finger in my vagina to clean it and a small blood covered thing was on my finger. It looked a little like salmon roe. With pink streaks of blood. I was terrified that something was wrong. The next day I went to see the dr. and had a pap smear done. A week later I get a call to come back and see him as soon as possible. So I go, I was told the cells have grown and immediate action needs to be taken. I was schedule for a hysterectomy AGAIN! This time was just to remove my cervix, since my uterus was removed after the birth of my son. The dr. said something about having a HIGH GRADE SIL. I don't know what that means. But I didn't care. All I thought was if this gonna prevent this thing from turing into cancer, then a another hysterectomy is neccessary! The dr. told me that if I don't have it soon, within a matter of months it would be cancer and given that I don't have a uterus it would spread dramatically to the rest of my body. So it was set. My hysterectomy was done on August 07, 2008. I'm still recovering and still very much in pain. Now, I also have a cold so all the coughing and sneezing, is really putting strain on my incision and caused me to spot again. The spotting stopped a few days after the surgery, but returned when I started moving around more and trying to chase my sons around the house. I'm a very sexual person so, I also tried to see if having my cervix removed would affect that part of my life. I tried being intimate and found that vaginal dryness is a problem. However, I refrained from sexual penetration. Given that the top of my vagina hasn't healed yet. It's been two weeks now and my incision is healing nicely but my insides still a feel a bit brused. I'm walking more often but after awhile I feel tired. Anyway..
My sex drive hasn't changed, I'm still very driven for it and, I made a alittle mistake last night and had sexual penetration. After that I was terrified to find that I was bleeding. I know that the top of my vagina hasn't quite healed and now I'm worried. My dr. constantly told me that things I do could make my insides fall out though my vaginal. I'm curious if that is really possible. I'm worried that my actions last night could've caused some damage to the top of my vagina. Before last night, I was using pantyliners to catch the spotting, now I upgraded to actual pads.
I know, I should've waited but I'm only human.
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). That came back as grade 2 endometrial cancer, something that is very unusual in women under 40. They did an MRI to see is a hormone therapy was an option for treatment. unfortunately the results came back less pretty then the surgeon would have liked so he said a full hysterectomy was needed. I had the surgery on Nov 7th and I've been home recovering since then. I had so little time from diagnosis and prognosis that i haven't had time to process everything. recovery after surgery wasn't as bad as i thought it would be. I had an epidural put in (which i highly recommend), got a UTI from the catheter (which they got right away so it wasn't bad), got my staples out 9 days after, and only 1 little complication that was more of a bother really. Less than 2 weeks after surgery, I found out that they got everything and i am cancer free which is wonderful but im also baby-maker free and that makes me so...well just sad and empty. Its not like i was looking to have kids now ( i still feel like a kid myself) but i have always loved kids and talked about how badly i want them. Since the surgery i have not really let myself think about the aftermath of a hysterectomy because anytime i do, i fall apart. Im 27 and in menopause! Hot flashes, fatigue, night sweets and all! Anyone have any coping skills to share? oh and as far as those hot flashes go, I'm on Lexepro which is a mild antidepressant but it also controls hot flashes! its wonderful!
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