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VIP Member
Ultrasound
I had another ultrasound done. This is what the 1st one (Jan) said:
Findings: The uterus measures 8.5 x 3.6 x 4.4 cm in dimension. The endometrial stripe measures 8.6 mm in thickness and is unremarkable in appearance. There is a mixed hyper and hypoechoic lesion within the ventral aspect of the uterine corpus measuring 1.3 x 1.3 x 1.4 cm in dimension most consistent with a submucosal leiomyoma. The right ovary measures 2.6 x 1.4 x 2.2 cm in dimension and contains an anechoic cyst measuring 2x 9 x 1.9 cm in dimension. The left ovary is not very well visualized. There is a left adnexal cyst meeasuring 3.6 x 3.9 x 3.5 cm in dimension. There is no evidence of free fluid within the cul-de-sac.
Impression:
1. Left adnexal cyst (3.9 cm in maximal dimension)
2. Submucosal leiomyoma (1.4 cm in greatest dimension)
3. Small anechoie right ovarian cyst
This is what the 2nd one (March) said:
Findings: The uterus measures 3.8 x 9.7 cm with bilayering endometrial thickness of 7mm. IUD noted in place centrally in the uterus. The small leiomyoma demonstrated on previous study anteriorly in the uterus is not as discretely identified on today's study but is vaguely suggested. Myometrium is generally heterogeneous which may be related to other poorly difined fibroids.
The right overy measures 1.6 x 1.7 x 3 cm and contains a 1.3 cm benign appearing cyst. Left overy measures 3.6 x 4.2 x 5.6 and contains a 2.5 x 3.4 c, cyst. This is perhaps a bit smaller than had been suggested on the previous study. Continued follow-up ultrasound in 6 weeks to insure this regresses or resolves.
A second 1/2 cm left ovarian cyst has since developed.
No free fluid in cul-de-sac.
Impression:
1. Two left ovarian cysts are now present. The dominant one measures up to 3.4 cm in size. It is minimally smaller than on previous study of 1/18/08 but continued follow-up ultrasound is requested as detailed above.
2. Uterine leiomyomatous disease suggested. IUD in uterus.
This is what the 3rd one (May) said:
Findings: The uterus measures 8.8 x 4.7 x 5.5 cm in dimension. Within the uterine fundus in the interstitium of the myometrium there is a hyperechoic lesion which measures 1.1 x 1.2 cm in dimension consistent with a small interstitial leiomyoma. The endometrial stripe measures 9.7 mm in thickness. An intreuterine device is in position. The right ovary measures 3.4 x 1.9 x 1.5 cm in dimension. Several small anechoic follicular cysts are present within the right ovary. The left ovary measures 5.9 x 3.6 x 2.9 cm in dimension. Multiple anechoic cysts are present, the largest of which measures 3.7 cm in greatest dimension. All the cysts taken together measures 5.7 cm in aggregate length. Overall, the aggregate size of the left ovarian cyst is increased since the last examination. Left ovarian tissue is not well characterized on this study.
Impression:
1. Overall increase in the size of a grouping of cysts within the ovary which in aggregate now measures 5.7 cm in length.
2. Intrauterine device in position
3. Interstitial leiomyoma withing the uterine fundus.
Does anyone know what all this means? I'm a nervous wreck. To me, it seems like I have more cysts and bigger ones. And now I have a hyperechoic lesion which I don't know what it is. Does anyone know what
a hyperechoic lesion is? Any information will be appreciated.
Thank You
Bernice
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VIP Member
I went to my doctor yesterday, she told me that there's nothing on the ultrasound to suggest cancer. She said but to be on the safe side, she did a blood test (I think CA 125). She said she doesn't think there's anything to worry about but she said since I'm a big worry wart (she said she never met anyone like me before, always worrying) that if I wanted her to, she would remove the ovary with the big cyst but she doesn't think it's medically necessary. I asked if she can do a full hysterectomy. She said if that's what you want, I'm willing to do that. Then I told her that I was never put under before and I don't know what it's like (something else to worry about). She said if she does the scope thing and takes out my one ovary, I would have to be put under. But with a hysterectomy, I can have a spinal. I would be awake but all drugged up to not know what's going on. I'm a nervous wreck. I'm worrying about the bloodwork. I have HPV and had abnormal cells once before. Another reason I want a hysterectomy. I want these cysts out of me but then again if I have a hysterectomy, menopause will soon follow and then there's all the hot flashes and night sweats and mood swings. I really don't know what to do. But the first thing is the bloodwork and hopefully if will come back normal and then I can decide what I want to do.
I had a complete blood count done recently (to check my Iron) and my red cells and white cells were normal. That's a good sign, isn't it? I mean if there was anything going on, my red cells or white cells would be off, right?
Bernice
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Silver Contributor 100+ Posts
A normal workup is always good! 
If there were an infection, your WBC would be elevated. So you've done the CA-125, which seems most likely to come back normal, and you want a hysterectomy? Can I ask why?
I mean, yeah, I am certainly looking forward to the day I don't have to deal with my periods anymore. I get ovulatory cysts, which sometimes burst when I ovulate and since they're small, they're not horrific, but there's always a few at a time, so sometimes it even hurts to put my foot on the floor because the pain is so bad that one darn day I ovulate.
I've also had fibroids, and underwent a myomectomy to remove one large one (the size of a grapefruit originally, shrunk by medication) and two smaller ones. My periods were going twenty days at a time and I was bleeding through a super tampon and overnight pad in less than an hour for the first three days of my periods. I literally couldn't go anywhere if I had my period. That was pretty awful. Everything is much, much better now.
But I still wouldn't want a hysterectomy.
I personally object to a doctor agreeing to give you a medically unnecessary hysterectomy just because you're a worry-wart! Am I missing something? Do have a strong family history of uterine or cervical cancer? Do you have endometriosis? How many times have you dealt with abnormal cells? I read one or two of your other posts but didn't see anything to suggest you having something so drastic done.
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VIP Member
>>If there were an infection, your WBC would be elevated. So you've done the CA-125, which seems most likely to come back normal, and you want a hysterectomy? Can I ask why?<<
I really hope you're right and it does come back normal. I want a hyserectomy because I have these cysts that won't go away. My left ovary has multiple cysts measuring 5.7 cm. I get these cramps (like I'm due for my period) and my thighs ache. I'm guessing it's from the cysts or fibroid since I had an IUD inserted, I don't get my period anymore.
>>I personally object to a doctor agreeing to give you a medically unnecessary hysterectomy just because you're a worry-wart! Am I missing something? Do have a strong family history of uterine or cervical cancer? Do you have endometriosis? How many times have you dealt with abnormal cells? I read one or two of your other posts but didn't see anything to suggest you having something so drastic done.<<
I have HPV and had abnormal cells once (so far). My mom had a hysterectomy when she was in her 30's (because of heavy bleeding). I take after her side of the family. The reason I had an IUD inserted was because of heavy, long and bright red periods. Now I have these cysts that won't go away. The 2nd ultrasound, the cyst went down some but the 3rd ultrasound, the cyst increased in size and now I have a lot of cysts in both ovaries.
Bernice
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VIP Member
>>If there were an infection, your WBC would be elevated. So you've done the CA-125, which seems most likely to come back normal, and you want a hysterectomy? Can I ask why?<<
I forgot to add that I heard and read that the CA-125 isn't reliable. So the test can come back normal but the cysts can be worst than what the test says. Am I right about this? If so, then why do the test if it's not reliable and accurate?
Bernice
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VIP Member
I got the results for my CA-125 back. It should be under 25 and mine is 6. So it's normal. How reliable is this bloodwork? I have to go back to my doctor next week and then we'll decide what to do. I might decide to do another ultrasound in a couple months and if the cysts get bigger or stays the same, I might decide on a hysterectomy, not that I want to have surgery but I get cramps almost everyday and my thighs ache. Any suggestions?
Thank You
Bernice
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Silver Contributor 100+ Posts
That sounds wonderful, a six for your results. That's obviously well within the normal range. What does the CA-125 have to do with cysts? It's a test to check for uterine cancer.
Ovarian cysts are a pain, as I mentioned, I have them too, but they can be removed laparascopiclly for you in one procedure. I know someone who had this done.
I think if the bleeding is under control, and the cysts can be taken care of in a procedure, that a hysterectomy is a very drastic procedure to take care of some issues that tens of thousands of women have.
I do not have HPV, but I had abnormal cells and a colposcopy. While I wouldn't want to have it done again, IMO it still does not necessitate a hysterectomy, and I still question the ethics of a doctor who will do that to you! It is a major surgery and not something that should be taken lightly.
Just because your mom had a hyster in her 30's does not mean that's right for you. Our mothers did not have the advancement of the procedures and medications that are available to us in this day and age. They pretty much removed the reprodctive parts of any woman with heavy bleeding, endometriosis, or unexplained pain, because they had no other alternatives.
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VIP Member
>>That sounds wonderful, a six for your results. That's obviously well within the normal range. What does the CA-125 have to do with cysts? It's a test to check for uterine cancer<<
I have no idea. LOL I thought the CA-125 test is to show if the cysts was cancer or not. That's why I thought she ordered the test. I'm going back to her next week and I'll ask her. Maybe she just wanted to rule out cancer.
>>Ovarian cysts are a pain, as I mentioned, I have them too, but they can be removed laparascopiclly for you in one procedure. I know someone who had this done<<
Are you awake with laparascopically? That might be a option and correct me if I'm wrong but if I have the cysts (on both ovaries) removed, they will and could come back and I might have to keep having them removed so why not just get all of it out and then I won't have to deal with it anymore? I really need advice. Some family and friends are telling me to have a hysterectomy and others are telling me not to. I don't really want surgery if I don't need one but I'm really frustrated with these cysts not going away.
I might decide to have another ultrasound and then go from there. What if these cysts are cancerous because they're not going away? That's what I thought the CA-125 test was for but now I find out that's not for the cysts. I'm really so confused about everything.
>>I think if the bleeding is under control, and the cysts can be taken care of in a procedure, that a hysterectomy is a very drastic procedure to take care of some issues that tens of thousands of women have<<
I had the IUD inserted in Feb and lightly bleeding for a couple months off and on. I stopped bleeding a few weeks ago and started back up 5 days ago but very light, I'm thinking this is my period but I'm not sure. My doctor told me that after 6 months, I won't get any more periods. These 5 days, the cramps are worst. I'm thinking maybe it's from the cysts.
>>I do not have HPV, but I had abnormal cells and a colposcopy. While I wouldn't want to have it done again, IMO it still does not necessitate a hysterectomy, and I still question the ethics of a doctor who will do that to you! It is a major surgery and not something that should be taken lightly<<
I have HPV and had abnormal cells once. I also had a colposcopy. I'm going to my family doctor and my OBGYN next week and I'm going to talk to both of them about this. Isn't Laparascopically major surgery too?
I take yours and everyone's advice seriously so please help me make sense of all this. At one point, I want to avoid surgery (any surgery) if I can. I don't know what it's like because I've never had surgery before and was never put under. Then another point, I'm so frustrated, stressed, nervous and fed up that I want then to take it all out.
Bernice
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