Hi all, I'm Jackie, 36 from London (now living in Essex). I'm in the throws of this awful disorder right now and here's my story to give you an insight.
Started my period at 9, then stopped for a year and came back when I was 11. Everything was ok. At 16 I had terrible tempers, so the doctor put me on progesterone (Neogest) - periods stopped. At 25 grandad died, nan died, dad died within 15 weeks. At the same time I had just started my first relationship, and came off the pill as tempers had gone and we used contraception. Then started getting horrendous cramps like someone was punching me in the cervix constantly. Whilst trying to hold myself together with grief and trying to stay happy for my new partner, ended up on Prozac, which literally turned me into a zombie. But stayed on it for 4 years. Came off it and everything was ok for a while but bled for a whole year - then got diagnosed after several tests with PCOS. The same week they also found out I had JUST got diabetes too because of it. Then had an almighty crash (which I now think was the beginning of PMDD) which helped when I started to take Seroxat. Came out of it within about 8 weeks. Every now and then I'd have a crash, lay in bed trying to sleep, crying uncontrollably, thinking about suicide, horrible thoughts, thinking nice stuff which would then manifest itself as something else in my head. I literally at one point thought I was a little girl and (as I live with my mum) kept talking like a kid and calling her mummy (when the other part of my brain would say WTF are you doing? Knowing full well it wasn't me - you know what I mean). Hearing that devil on my shoulder going on and on and on about how horrible I am and how no one loves me........
Luckily my hubby is lovely (although can upset me quite a bit as I'm very very sensitive tbh and take things the wrong way quite a bit) and a lovely mum (who does sit and gives me cuddles if I cry) and a surrogate sister who is the very same as me (she suffers with her "nerves" too) so she gives me pep talks on how wonderful I am. But this time feels like it's never ending.
For the last 5 days I've been on a terrible downer. But my period has started today so I'm hoping in the next few days I'll get back to being me again. I just feel so alone when it happens. My head pounds, my stomach feels like it's upset and really nervous, which stops me eating tbh (mind you I've got 15 stone to lose so it's no biggy as long as I have the odd bacon sandwich to keep me going and a smoothy of beetroot, carrot and watercress juice...... bleugh) but it's like I'm terrified of something. That whole feeling of impending doom that comes over me, like my head is going to explode and my eyes are going to pop out. Also the feelings of hate that then turn to feelings of deep love for my hubby - and I do love him to pieces. But I sit there thinking how much I hate things and people and literally turn into a snarling which isn't like me at all. I'm usually really bubbly and giggly and girly. Albeit sad sometimes when I think of the fact that I'm so fat I can't walk properly and stuff (which I'm dealing with). But what is this bloody thing. I just sit and wait for the anxiety to make my head explode, or for me to jump 6ft out of bed for no bloody reason. Jittery nerves, pounding headache, eyes hurt. I close my eyes to sleep and I can't - I end up "talking" in my head to myself about how good I should feel. Fkin voices (automatic negative thoughts - not schizophrenic which I thought I was until my surrogate sister told me that she has it too when she gets anxious - thankfully I'm not going mad then). I even sit there shivering when I'm not even cold. And the tiredness..... omg..... the tiredness AND the depression AND the headache AND the nervous stomach...... total and utter nightmare. It's the blackest of black when I feel like this, like I'm trapped in my own head.
Don't know if anyone else feels like this or it's just me, but I hate it. Went to the doctors last month over it - he just shoved progesterone at me and said "well that's all we can do really........ but are you taking B6" - AM I TAKING B6??????????? You wouldn't believe how many vitamins and minerals I'm taking you dumb *** doctor - B5, B6, B12, Folic Acid, Evening Primrose, Chelated Magnesium, Vit D, Selenium, Omega 3, Pure Orange Juice for my daily Vit C, and Iron as that helps deal with the tiredness (and the black rings around my eyes amazingly - just found that out). You name it, I've had it. All to help with this bloody thing that has been diagnosed as either, Generalised Anxiety, PTSD, or Depression. So anyway........ today my period has started - so I'm hoping that these horrible feelings and the dislike of living where I am (when in fact it's the seaside and not too bad at all) will go away in the next few hours, or days. Only thing I look forward to is going to bed because at night I'm so tired from being like this, at least I do get a little sleep before the traffic outside starts again at 6am and it's easier to fall asleep in my hubbys arms when it's at night too. If I try and fall back to sleep in the mornings - no chance - I get to panicky. Bum Bum Bum.
Meds I'm on now are 40mg Seroxat, diabetes meds and the vits and mins I said before.
Sorry for going on but I just hate this so much, I feel like I'm going crazy. But I know I'm not on my own though, feels like it all the bloody time though
Jackie xx