endometriosis and lupron

[heryseshta]

Just a couple of days ago I got my first injection of lupron for my endometrios. I was just wondering if anybody else has had it. How fast did the side effects take effect? What were your side effects? And did it work?

[ButtRFly]

I wish I could help you with that. I also suffer with endo. My GYN offered to give me the Lupron inj., but I have opted to have a hysterectomy instead. I have had endo for 8 years and the symptoms are getting worse. I am 35, and I told my GYN that I would rather do the hyst. than the injections.


I hope everything works okay for you.

[heryseshta]

I'm only 21, my doc doesn't want to do the hyst on me. But both my mom and grandma had to get them, so I am guessing that I'll need it. If this doesn't work though I'm gonna have to try for the hyst.

[twirlgirl02]

I am 26 have been dia. with Endo for 6 years. Yes, I went on Lupron. I know you posted this months ago but, was just checking to see how it is going. I know a lot of people say they have problems with it. I didn't it was the only time I have ever been pain free in the last 6 yrs. 6 months of heaven!!!

Hope all is going as well as it can for you.

I wouldn't wish ENDO on my worst enemy!

[heryseshta]

The hot flashes are wearing off finally, it has been 7 months and they are still here though. I am still in pain and now some of my docs are claiming that it can't be endo because of how the pain is still here even with the lupron. Now I'm looking into getting a surgery with Dr Redwine in Oregon. I hear that his success rates are pretty good.
I agree, it's horrible!

[Marie36]

Hello,

I have suffered with extensive endo for 17 years now. In the past, it had spread throughout my pelvic area, my bowel and even my left kidney. Over the years, I’ve had 2 children and was on bc as treatment for the endo, but still ended up having 6 surgeries including a sub-total hysterectomy in March of 2006. They removed my uterus, both fallopian tubes and my left ovary had been removed during a previous surgery. Therefore, all I have now is my right ovary and cervix. I went almost 3 years pain free after that, which was wonderful, because I had never gone more than a couple months without pain before. But I am now having issues again. I began having a lot of pain last January and went to see my pcp. He originally thought it was my appendix, but after a sonogram was done, they found three small cysts on my ovary. I went to see my gyne about a month later. At that point in time, I was only getting the pain (and sometimes spotting) once a month around the time I would normally have a period if I didn’t have the hysterectomy. The pain was still manageable at the time. They did another sonogram and saw the 3 cysts were still there, but had not changed in size. I was told they may or may not go away, but that we would monitor them and just try to manage the pain as it came.

Unfortunately, it began to get much worse last October. Now I get spotting and some pain for a few days, but then about two weeks later, I’ll get terrible pain that will last anywhere from two to three weeks! There are times that I can’t even walk correctly and the pain has spread. It’s throughout my entire pelvic area, lower back (I never used to have pain in my lower back from endo before, so this is new to me), pain when I urinate or have a bowel movement, headache and light headedness at times. Not to mention the spotting. They did another sonogram and although the cysts still aren’t huge, they have doubled in size. That’s when they determined they’re endometriomas. So far, the only options I have been given for treatment are Lupron (which I would only be able to take one time and would then need to switch to something else) Depo-Lupron or surgery to remove my only ovary….which of course will then throw me into menopause at the age of 36. Being that bc never worked for me (I had all those surgeries while on bc) and I had terrible side effects on everything they tried me on, I really don’t want to try the Lupron or Depo-Lupron. I never do well on bc and am hearing the same kind of stories about those two options. But at the same time, I don’t want to go through menopause yet. So, I kind of feel lost. I did contact a specialist in Philadelphia (about a 6 hour drive for me) that I am going to see in a couple weeks. I’m hoping he will come up with some better solutions, but if he doesn’t, at least I will have a second opinion and will need to make my decision. I don’t want to live like this again. I’m doing very well today and have been for almost two weeks, but I know that can change any minute. Twirlgirl02 made me laugh, because I always say that to my husband “I wouldn’t wish this on my worst enemy!”

[Ahryin]

Though personally I do not have endo one of my close friends did. She used wheatgrass ( a more holistic approach) for treatment and after 6months saw significant change. You may want to look into it

[Marie36]

Hmm....that's exactly the kind of thing I have been wondering about. I just had no idea where to look or what to look for. I even asked my doctor if there was anything more natural that I could try and he flat out said no. I will look into the wheatgrass though. Thank you!

[Ahryin]

Make sure you either get it fresh or frozen. there is a company called Evergreen that has it frozen thats the one I use. I get it at the Whole Foods store. Do not use the powder form you will not get all the benefits. You should google benefits of Wheatgrass

[oneyearsolid]

Hello
I am 25 and have been bleeding for just short of one whole year I did provera and nothing I did seasonique and nothing so now I was told the next step is lupron and I have always been against it but I'm scared I'm going to bleed to death. Let me give you some figures I am 5 foot tall wiegh 84 lbs have all the normal endo stomach issues. But I do keep on passing out but they keep on saying I'm not annemic just low in iron... really... of course I am low in iron ive been bleeding for a frekin year. I guess I am asking has anyone been in the same place I dont know what this is going to do I am so scared I am going to loose more wieght the side effects people normally get are gaining wieght things like that but I have read of the ones like me that are thin loose even more wieght ii cant have that. I am just scared a need some advice maybe from some one who has been in the similar position??