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  • actual health post!

    I titled this post that way, because so seldom are we actually posting about our physical health on our beloved "Women's Health Forum", even tho the categories are available.
    Just thought it was funny. And I'm referring to our regulars

    Last fall, I had a hormonal shift, and have been in some transition of menopause since then, for lack of better explanation. I've not felt well for awhile. In February it was enough that I cut back 4 shifts per month, thinking stress was just too much.

    In March, I really took a turn and I've been battling ever since. I was hospitalised a couple days last week. We aren't really sure what's going on. I thought it was lupus, my doc thought that was most likely also, but so far all tests have been negative. Doesn't mean it isn't....but getting a diagnosis is not happening easily. Every test has been normal except the general one for autoimmune, which could be many things. I will speak with a new doc next week.

    Meanwhile I'm worsening day by day. I've been off work for 2 wks, and won't return until at least mid June. I want to begin treatment empirically but the specialists convinced me that is not a good idea. I guess i knew that. But I'm really struggling with the lack of knowledge, no diagnosis, no treatment, no control...It is beyond frustrating. I've even consulted with docs in Germany and Russia for opinions, tho I couldn't visit them for a full physical exam obviously. They also are unsure, unwilling to plant their flag and state a diagnosis.

    I'm bored...so many things I want to do. Things I need to do. Dogs are irritated with the inactivity with me, glaring at me incessantly. But I'm just not able. I'm hobbling around like an elderly lady...took me 30 minutes to "walk" around the block a couple days ago. The pain and stiffness in my body are often not controlled by pain meds or anti-inflammatory meds.
    Good days and bad days...changes hourly some days.

    I'm hoping the new doc next week will have experience and knowledge to review all the info we've already collected and try something...I want to get back to work. And Back to life!

  • I'm reading up on "alternative" treatments...researching different causes of full body involvement such as I have. It's infuriating at times...

    Thanks for the positive thoughts my way, CW. That's all I was hoping for - more positive energy coming this way

    Comment


    • Originally posted by atskitty2 View Post
      I'm reading up on "alternative" treatments...researching different causes of full body involvement such as I have. It's infuriating at times...

      Thanks for the positive thoughts my way, CW. That's all I was hoping for - more positive energy coming this way
      Oh kitty, I havent been going around the site/forums recently and came across this.. nor do i remember reading how your health was before, your diets, etc, but for 'alternative' i just know some have their antiinflammatory diets wc help in both relieving pain not thru meds, but thru healthy foods, and also recovering faster, like when they take more of green leafies and chlorella, for example. I'm learining on these too, but life does have surprises. That's why it is not good to trust in just our own understanding, i am also learning.

      Comment


      • I very sorry Kitty, you going through all this. I feel really bad right now as I am sad. About 10 years ago Donna went through some what of the same thing and it came down to a low zinc and iron. This cause her to have very sore joints and no energy to do anything.
        But she suffer about two months with this issue till the doctor figure it out. Now she takes extra zinc and iron pills and doing well now with no issue any more with this problem. I wish you the very best as you get the right answer and a cure for your illness.
        When out driving always turn left. Then, should you become lost, you can find your way home by reversing the procedure and always turning right.

        Comment


        • We've checked levels of all we can MG, and ruled out deficiency. Just sent out yet another round of bloods to recheck and monitor some things, and a couple new tests. I think I'm improving actually, had a day recently that I felt really well.
          I'm beginning to wonder if it isn't just stress and sheer exhaustion. I do think there's something wrong that suddenly this happened, but I'm puzzled.

          Sam, I actually eat a diet rich in foods that are believed to reduce inflammation anyway. I changed to a low carb diet a couple years ago, and it just so happened to be a lot of my favourites, which raises my interest, believing my body was trying to tell me something a couple years ago...With the noticeable change in how well I felt when I changed diet...

          Comment


          • Well I glad you are feeling better now Kitty that's excellent news. It's really amazing how much stress can really mess up your body and cause you other health issue as well. With Donna she is a type 2 diabetic and stress can really cause her some really serious health issue.
            When out driving always turn left. Then, should you become lost, you can find your way home by reversing the procedure and always turning right.

            Comment


            • Well, thankfully I'm healthy otherwise. I have no serious underlying conditions to complicate things. Still no diagnosis, but I'm going to try a night back at work.

              Comment


              • Sorry for not responding earlier, but this sounds like what my SO went through several years ago. She was originally diagnosed with lupus, but then another doc said it was not. She went through all of the tests but there was nothing conclusive. The best diagnosis was fibromyalgia. With her it is episodic. I've tried to get her to take SAMe but she seems to manage when the episodes occur. She has a horrible diet which I am sure does not help (she thinks snack cakes and sugar cereals are a legitimate food group even though she does not gain weight). I am also on a low carb eating plan (I've lost a significant amount of weight over the last year on it) and have just ordered a Curcumin (Tumeric) supplement as an anti-inflammatory. It seems like you are getting better . . . which is the best thing!
                "The only consistent feature of all of your dissatisfying relationships is you." Despair.com "Dysfunction"

                Comment


                • effy, they're writing in a Fibromyalgia diagnosis for me too, tho I tend not to agree. I have a lot of symptoms that don't fit with Fibro, and pain really isn't my primary complaint.
                  I will keep reading up and consulting with new docs. My neurologist agrees it isn't Fibro. He could find nothing on his battery of tests either.

                  I was taken in to ER with stroke-like signs. That was ruled out. 6 docs talked to me, assessed me and reviewed my labs, nobody had an answer, or would even throw out any possibility. One suggested migraine, as a cause for the episode of stroke symptoms. I could buy that, I guess. Migraines come in different forms, so ok.

                  These types of cognitive changes are more bothersome than the pain, which is why I believe it isn't fibro. Speech and fine motor skills, processing info and short term memory losses, among others.

                  I just don't know. I don't necessarily think it's lupus any more either, I just don't know what it is.

                  I am back to work, and doing pretty well. Good days, bad days and some in between.

                  Comment


                  • fibromyalgia is a very complicated problem. everyones symptoms are different to some degree. the cognitive changes could be what they call fibro fog. how are you sleeping?

                    Comment


                    • I've been an insomniac since a teen, I have never slept well, or very long, sometimes not at all.
                      I'm taking something now that actually helps me sleep, I've cut back work hours and stress.

                      My primary also doesn't believe it's fibro.

                      I've taken matters into my own hands, in a sense. I've changed my diet even more drastically and added some supplements. I'll see how I am in a few weeks/months.

                      Comment


                      • Fibro is a diagnosis of exclusion, as they say. When other things are ruled out, Fibromyalgia is ruled in, as there are no specific tests for it. I'm not ruling it out at all, but I do wonder if we're missing something. My instincts just tell me to keep looking, as diagnosis may be incomplete. My primary agrees, I don't meet the cardinal criteria for Fibro, so she wants an answer too.

                        The rheumatologist who diagnosed me, didn't talk to me at all & had not laid hands on me. She didn't know about the MRI abnormalities, & other problems I'd been experiencing.
                        She was not thorough. She asked about the pain, and said it was Fibro, ordered some tests & I was done w/the visit. I told her pain isn't my top complaint. She dismissed my weakness & fatigue and told me NOT to exercise & diet won't improve Fibro, to just enjoy life as best I can, reduce stress & take these meds to help sleep. I had no respect for those answers, because I knew better. I did, however, take the meds! Because I've been desperate for restful sleep for years! lol It made a huge difference in the first weeks, then I reached a plateau, and stayed there all summer. I just didn't believe she'd given me a thorough workup & exam. I knew of the pressure points & the supposed benchmarks for fibro...

                        Anyway, I see another rheumatologist tomorrow for a second opinion.
                        We are also on track to rule out MS. No family history of MS, so it isn't likely, but it's next close in resemblance w/signs.

                        I've not had any IBS signs, I think all the stress settled elsewhere in my body. I'm taking great care of my gut, I have honestly seen more improvement since I've made my diet more strict & added supplements in the last few weeks, than I have all summer. I'm almost walking normally some days & my mind seems to be getting just a little stronger...I was able to play tennis one day for nearly a full 30 minutes. That was a milestone!

                        I'm getting better, one way or the other.

                        Comment

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