My clitoris is gone and my labia minora are fusing to the majora i think and it itches

[HerbalTea]

I am 42 and i have had the same body + or - 40 or 50 lbs wince puberty. Then it was like I woke up one day and my whole body is different. My face honestly looks like someone else’s. Inflamed and my eyes are smaller. i am getting large brown patches on my forehead that have white circles here and there in them about .5” diameter. My gut and my breasts bow both have an “under my” (breast, gut) and my stomach is so distended. This is strange because I have been eating so much healthier and less calories and been more active as well as moving my bowels what seems like constantly. My mons pubis also looks twice its normal size - it is a puffy thing all the sudden and, of course, sags like a second gut. I figured it was hard to find my clit because of that. But it also itched so bad between the hood and the clit. For months I would have to run to the bathroom and scratch in between the head and hood with a q tip or even a toothpick it itched so bad. It doesn’t itch there much anymore but I literally no longer have a clitoris. And i know about atrophy: I am not on any hormones and I still have sex and masturbate regularly. At least once a week. I still get my period every 28 days. Although it’s really hard all the sudden to orgasm. I guess i know why. My labia still itch as bad. It wakes me up at night and burns. It is the area right where my inner and out r labia meet. It only itches along that seam and the lower half of my labia minora are somehow gone. It almost looks like there’s a surgical scar: it is shiny and there is a very small bit of what looks like scar tissue.
I know this is terrible but it has been over 12 years since I have seen a gyno. I know I have a pocket too where, near the end or my rectum, stool will get caught and i have to push it out the other way - with a finger against the back wall of my vagina. I’ve had it since i was a teenager but it is only now that I have some sort of gastro issue that it is getting bad.
i know I need to go to the gyno like a decade ago but every one that I find (I don’t know anyone to ask for a referral around here but I have found 4 or 6 practices nearby online and tried to make an appointment on their site) cannot even see me until at least the new year. I feel like I’m just going to keep closing up and looking stranger and stranger. I don’t even know what to say to the receptionist. They ask if it is for my annual exam. Well, yes, but also I’m missing my clitoris and can use my vagina to control my poop…. But need to more than I used to (?) I would hang up on me. I have a ton of other health problems which is why I haven’t kept up with a gyno: I already have 8 or 10 doctors I see each at least 4 or 5 times a year. I am scared and I have no idea how to get them to see me early and therefore take me seriously. i am obviously not a demanding or take charge type person and don’t have it in me to demand an appointment with a practitioner I’ve never met. Please just help me. Of everything that is wrong with my body, this new “look” is the most upsetting as sex is really the one joy i still have and you couldn’t pay me to go to bed with anyone with suck an itchy weird bunchy vulva. I know you told others this has to be clitoral atrophy but you all must have missed something because this is not that. Please help thanks.

[Wednesday L.F.]

Hello and welcome.
Given what you describe here, it is imperative that you see a doctor. If your eating and movement habits haven’t changed but your weight is rising, the causes for that need to be investigated. I’m not a doctor. It’s possible that you’re retaining water, which can signal any number of health issues including things related to your heart.

If there is Planned Parenthood where you are, that’s a great place to call first. Even if there isn’t one near you, their website might have referrals. You can ask for a female physician if that makes it easier.

[Claret]

I am 42 and i have had the same body + or - 40 or 50 lbs wince puberty. Then it was like I woke up one day and my whole body is different. My face honestly looks like someone else’s. Inflamed and my eyes are smaller. i am getting large brown patches on my forehead that have white circles here and there in them about .5” diameter. My gut and my breasts bow both have an “under my” (breast, gut) and my stomach is so distended. This is strange because I have been eating so much healthier and less calories and been more active as well as moving my bowels what seems like constantly. My mons pubis also looks twice its normal size - it is a puffy thing all the sudden and, of course, sags like a second gut. I figured it was hard to find my clit because of that. But it also itched so bad between the hood and the clit. For months I would have to run to the bathroom and scratch in between the head and hood with a q tip or even a toothpick it itched so bad. It doesn’t itch there much anymore but I literally no longer have a clitoris. And i know about atrophy: I am not on any hormones and I still have sex and masturbate regularly. At least once a week. I still get my period every 28 days. Although it’s really hard all the sudden to orgasm. I guess i know why. My labia still itch as bad. It wakes me up at night and burns. It is the area right where my inner and out r labia meet. It only itches along that seam and the lower half of my labia minora are somehow gone. It almost looks like there’s a surgical scar: it is shiny and there is a very small bit of what looks like scar tissue.
I know this is terrible but it has been over 12 years since I have seen a gyno. I know I have a pocket too where, near the end or my rectum, stool will get caught and i have to push it out the other way - with a finger against the back wall of my vagina. I’ve had it since i was a teenager but it is only now that I have some sort of gastro issue that it is getting bad.
i know I need to go to the gyno like a decade ago but every one that I find (I don’t know anyone to ask for a referral around here but I have found 4 or 6 practices nearby online and tried to make an appointment on their site) cannot even see me until at least the new year. I feel like I’m just going to keep closing up and looking stranger and stranger. I don’t even know what to say to the receptionist. They ask if it is for my annual exam. Well, yes, but also I’m missing my clitoris and can use my vagina to control my poop…. But need to more than I used to (?) I would hang up on me. I have a ton of other health problems which is why I haven’t kept up with a gyno: I already have 8 or 10 doctors I see each at least 4 or 5 times a year. I am scared and I have no idea how to get them to see me early and therefore take me seriously. i am obviously not a demanding or take charge type person and don’t have it in me to demand an appointment with a practitioner I’ve never met. Please just help me. Of everything that is wrong with my body, this new “look” is the most upsetting as sex is really the one joy i still have and you couldn’t pay me to go to bed with anyone with suck an itchy weird bunchy vulva. I know you told others this has to be clitoral atrophy but you all must have missed something because this is not that. Please help thanks.

This all sounds too familiar. You likely have an un-diagnosed auto-immune skin condition called LICHEN SCLEROSIS. If you can try and find a VULVA Clinic. This is a non-sexually transmitted condition, caused by one's own autoimmunity kicking in. It can affect men as well as young children although not commonly. Unfortunately there is no known cure although topical steroids can help with the itching. The recommended ointment is Betamethasone and for the best Clobetasol. There is information on the net that you may wish to consult and take your concerns and exact symptoms . Part of the ailment is the fusing of the labia, and reabsorption of the labia and clitoris. It's not a pleasant thought or but is not life-threatening = but caution left untreated could lead to other complications.

Another related condition is LICHEN PLANUS and this can, as you've described, issues with other skin on you body.

Many Doctors are unfamiliar with these, so please take with you alll the information that you have available.