[Aussiegirl81]

Thanks for your post

Mamacitia, thank you for your post. I have been suffering with this for several months now & there just is not much info on this out there let alone the fact that so many dr's seem to have no information on this. Even when you read the medical sites the only treatments options offered is baking soda. The baking soda works temporarily for me so to see your suggestions about preseed & the compound mixture is great. I am going to see my dr in a few days and will ask him for the prescription for the mixture. This post has really saved me. This has such an effect on my life & I think dr's do not understand how it affects a woman's quality of life. It is about being able to have sex again without worry of a big white mess but it's also about how having this condition makes you feel as a woman. I was ready to give up dating & the stress this has caused me is not measurable. I have hope bc your explaination makes the most sense to me than anything i have seen. I have hope this will work for me also. Most simply put, thank you!

[taryn]

I cannot thank you enough for this info. I have been to so many doctors, including 2 "specialist", so many tests, so many crazy treatments, it goes on and on, for about 10 yrs!!I have always said, if a man had a burning crotch for one day, there would have been a cure the next day. I am so hopeful that this is my issue and feel some hope, something i haven't felt in a long time!!

[shellee]

Thank you all for sharing!! I have had the same problem on and off for a couple of years. This year it has been constant. I had the feeling that the discharge was causing the irritation and thinning my skin. I finally went to my GP who referred me to a specialist who diagnosed me with chronic inflammation of the cervix (cervicitis). No infection/yeast/STD and intial swabs showed possibility of atrophic vaginitis (which was discounted because i am not menopausal). The specialist offered me surgery (hysteroscopy and curretage with cervical diathermy) which basically means a scrap out and cauterization of the inflammed skin. This would have a 75% chance of relieving me of the discharge and "if it does not work you will have to accept that some women's physiology just works this way and live with it". It's been 4 weeks since the surgery. The discharge has basically stopped but there has been no change to the rest of the problem.. until desperate for help i found this forum. i have since used preseed overnight x2 and started drinking chlorophyl also lemon juice in water to try out the idea of balancing acid/alkaline down there. Feel better than i have in a long time. will see the surgeon for a post op appointment in two weeks. Hopefully now that i am armed with relevant info he will offer me other options.

[Rowantree]

Hello,

I know this post is really old, but to share my experience, I also had this condition for a long time - years because of going to the doctor and being told I had a yeast infection. I finally saw a doctor who started looking on the internet during the appointment -"bit unprofessional" I thought, but you know what, it did the trick! Her advice was to eat yoghurt. I did and noticed an immediate difference. Then I looked on the internet myself and here's what I found:

To get over CV you need to improve your alkaline levels. Simple - cut out foods that create acid and eat lots of foods that create alkaline until the balance is restored. I did this for two weeks and it went away - after having it for AGES and getting really depressed, so trust me it does work. NB a food that creates acid is not the same as an acidic food For example Lemons have an extremely high alkaline effect on the body even though they are acidic fruits! Weird huh? Take a look at this chart, it will really help you: (link removed not allowed)Please please please don't use suppositories or douches, I've heard many many times that these are bad for the body. And apart from anything else, I don't think there's a need.

[kkk]

Hi, I wanted to post this in case it helps anybody in all the forums I was reading, trying to work out what was wrong with me..

I had a stubborn yeast infection for a couple of weeks - canesten didn't do anything, neither did diflucan. Strangely, 2 swab tests showed no candida, so GP decided I had BV, though the discharge was odourless and symptoms didnt match. Metronidazole seemed to stop the discharge but I was left with a sore, dry inflamed vagina/vulva that no amount of creams or medication would cure. I even tried antibiotics (Amoxycillin) since somehow they cured a yeast infection last year but they didn't help this time. Derma-care cortisone cream, and salt or bicarb of soda baths helped a little but never for very long.

Finally a third (!) swab test revealed ureaplasma urealyticum which is a form of bacterial infection that you need special antibiotics for. I was given Doxycycline 100mg and was sceptical that they would help, since symptoms associated with this are bleeding, pain while peeing, abdominal pains, and discharge. I didn't have any of those. Or, most people have no symptoms at all so I assumed this was just a separate thing from what was causing my inflammation. From reading online, I was sure I most likely had cytolytic vaginosis.

HOWEVER..the doxycycline is working!! Yesterday 12 hours after the first dose I had a noticable reduction in irritation and today I am symptom-free. It feels amazing not to be aware of my inflamed crotch every step I take.

It took THREE swab tests for this to show up, and your doctors might not be looking for it so..if this helps someone get a similar solution to their problem I'll be really happy.

[Afs]

Thank you mamacita for your post. I was diagnosed with BV in May 2012 and while on Flagyl I got tonsilitis. Needless to say my body was maxed out on the antibiotic use and I developed symptoms of CV. At the time I had no idea what it was since my discharge was thin, clear, very watery, odorless, but EXCESSIVE. I live on an island attending medical school, and, ironically the medical care here is subpar. They kept diagnosing me with a yeast infection but I know my body and knew it wasn't. Finally they did cultures and it showed I had overgrowth of Lactobacillus (which according to the docs here I'm "completely normal" ha!).

I came across your post and tried Preseed. It hasn't been a miracle treatment for me (yet) but I was wondering if you had any side effects from it? I noticed that when I use it, the next day my discharge is SUPER excessive and thick/white/cottage cheese consistency. However, if I go a few days without using it that discharge goes away and reverts back to my previous discharge (thin, clear, watery). I contacted my doctor from the US and he said to use Preseed before bed for two weeks consecutively. I would like to know if others experienced the same side effects as I did and if it went away after prolonged usage. Thank you!

[Teacup]

Thank you mamacita for your post. I was diagnosed with BV in May 2012 and while on Flagyl I got tonsilitis. Needless to say my body was maxed out on the antibiotic use and I developed symptoms of CV. At the time I had no idea what it was since my discharge was thin, clear, very watery, odorless, but EXCESSIVE. I live on an island attending medical school, and, ironically the medical care here is subpar. They kept diagnosing me with a yeast infection but I know my body and knew it wasn't. Finally they did cultures and it showed I had overgrowth of Lactobacillus (which according to the docs here I'm "completely normal" ha!).

I came across your post and tried Preseed. It hasn't been a miracle treatment for me (yet) but I was wondering if you had any side effects from it? I noticed that when I use it, the next day my discharge is SUPER excessive and thick/white/cottage cheese consistency. However, if I go a few days without using it that discharge goes away and reverts back to my previous discharge (thin, clear, watery). I contacted my doctor from the US and he said to use Preseed before bed for two weeks consecutively. I would like to know if others experienced the same side effects as I did and if it went away after prolonged usage. Thank you!

I am also having lots of discharge with the preseed, are you still using preseed and has it worked for you? I have had so many cultures done and everything comes up negative, I asked one dr to check for cytolytic vaginosis after reading about it and she said that it was a made up diagnosis... The last dr I saw measured my vaginal ph and said I have 5.0-5.5 is this number acidic? He said to use preeseed 2 times per week, but I get vaginal burning as soon as I stop the preeseed.. these drs don't have a clue about cytolytic vaginosis,

[mvd24]

I also have CV (I think). It's been almost a year and I have constant white thick discharge, slight itching. It's mostly awful because during sex stuff comes out noticeably, sometimes it dries and ends up being like sand all over the bed. Sometimes sex is painful- I get a burning sensation. I have been to 3 doctors, tested clear of yeast/BV/STDs. Last appointment I even brought an article from a scientific journal reviewing how to diagnose CV as compared to yeast/BV/etc. on a slide. The gyn read it, did another slide, and told me the same thing: you're fine, no infection, stop worrying about it."

This is not normal and I need it to stop it is extremely depressing.

I have been doing baking soda douches nightly, followed by a little pre-seed in the morning when I wake up and it has reduced the symptoms a bit. The problem is if I miss even one night it's back right away. How long do I have to do this for? Please if there is anyone who was able to CURE them self with this method please post and give me some hope. I feel completely hopeless. I'm 22, I do not want to deal with this for the rest of my life.

someone please answer.

[sadandstressed]

Hi Mamacita,

Thank you SO much for starting the thread, and sharing such detailed descriptions of your experience. As you can tell, even all these years later it's super helpful and appreciated. I have some questions for you, and all else reading or staying on top of this thread, especially afs, and several others who have posted recently and who maybe share similar experiences as me. First, I'll outline my situation, and apologize on advance for it being so long!!

January 2011, I ended a long monogamous 7 year relationship. Everything was OK 'down there', except for I became too wet during sex... but this was more of a problem because my ex wasn't exactly 'large', and so he slipped out a lot. It never really bothered me (it had been beneficial with past lovers) and really wasn't such a big deal. Anyway, discharge at all times of the month was fine... variable of course but nothing weird. I often (if not always) tasted myself before sex... just out of habit.. to make sure all was ok.. and always seemed fine to me!!!

After we broke up, I was a year celibate. Then i met someone who I liked a lot, and I was excited to have sex again. I felt clean and virginal and excited to share sex with someone who i had a much stronger sexual connection with than my ex.

So, in February 2012, i had (really enjoyable) sex with this new partner. 3 days later, i noticed a foul odor with some greyish discharge. It was awful. I'd never experienced anything wrong down there and it scared me. I went to the doctor, and they prescribed Flagyl for BV. The doctor asked if the sex had been protected, and it was for the most part except i did allow him to enter me once or twice before insisting on a condom. very STUPID i know... but i'm just giving you all the facts.

I was relieved when the Flagyl cleared up the BV immediately... I was VERY scared i'd caught something, and it shook me to the core in terms of solidifying my safe sex practices. A week or so later, i had sex with him again (I didn't tell him about the BV, as the doctor told me it wasn't a sexually transmitted disease, and was probably a common reaction to me becoming sexually active with someone new, having something 'up there' after having nothing for so long).

Low and behold, 3 days after having sex with him for the second time, with condom, the BV came back!! I took another round of Flagyl (which is apparently a very strong antibiotic) and it disappeared again. But this point I start researching like a crazy person online, and stumbling across many, many forum threads about people who have BV and CANNOT get rid of it. This upset me no end. I got immensely stressed. I started sharing my story with a couple of close friends, because i was so insanely stressed and upset agonized over it, and dreaded my new partner calling me before my BV had cleared up. Also at this point, I had stumbled across some online threads that suggested girls insist their male partners take a round of Flagyl when they have recurring BV. I'm sure you can empathize how confusing it is to read conflicting advice online... my doctor had insisted my partner need not take anything... but the pharmacists when i got the Flagyl recommended my partner definitely take Flagyl... (without me asking).. I was very confused.

To top top it off, i started to wonder whether my new partner was a bit 'dirty'... i.e. didn't clean his penis properly, or something....? Eventually i thought, i have to tell him... i want him to take ths Flagyl too... so i told him over email i'd had an infection both times we'd had sex, and that we absolutely have to use protection and not put his penis remotely near my vagina without a condom.. hah!... my plan was to also ask if he'd be prepared to take a round of Flagyl that i'd purchased in addition to my dose.. when i saw him..

I'M SORRY, I KNOW THIS STORY IS VERY LONG...

After the second round of Flagyl, i then kept waiting for everything to get 100% back to normal down there, but i was never 100% convinced it was quite right again. Honestly, once you get that bad odor smell in your nose, you're kinda always convinced it's still there. Anyway... i put off seeing him, made excuses and eventually didn't feel comfortable enough to express myself freely sexually with him, and avoiding seeing him ever again. I know that may sound stupid and childish, but I'm 35, he's 28... the age things was enough of a weird issue for me to begin with... then on top of already being brave enough to tell him about the infection (i didn't explain it was BV or a terrible fishy odor... i just said an infection)... I just couldn't face drowning the pour guy in horrible older women's troubles that related to our sex life, and my vagina, and have him ever remotely think i was still smelly... especially because as i said i wasn't 100% sure all was back to normal... even though the terrible fishy odor was gone.

I now started taking: folic acid, acidopholous capsules/probiotics, cranberry tablets, putting a priobiotic up there.... i didn't do any douching.

I stopped: taking my multi-vitamin, and my omega three fish oils - in case these were contributing to my weird odor. I also stopped eating garlic and onions.

Then about 6 weeks afterwards, i'm just so distraught that it's not 100% back to normal... it's not fishy,, but more... sour and creamy... turns out i have a yeast infection (not surprising after the Flagyl apparently), and i'm prescribed Monistat. I take it, and my yeast infection clears up... and then everything seems to be on the way to normal.

Except it's definitely NOT...

I have ever since had what i can only describe in the following ways:

- Excessive discharge... MAINLY very watery and clear and thin... that smells very very acidy, or sour, or 'chemically'

- Occasionally i will have what seems ore like my old normal, kinda white, slightly thicker, normal smelling discharge... but randomly out of the blue i will then have a little gush of this very watery weird sour discharge... which actually usually smells much stronger and sharper and sour than it actually tastes... doesn't taste so bad most of the time. But it's VERY strong smelling. The worst is not when i put my fingers down and smell them... the worst is somehow when i am out and about wearing jeans, and i can smell my discharge through my trousers. It's NOT foul and fishy... it's sharp and strong.

Note: Once, during my first period after the Flagyl, i was on the train wearing thick jeans, and i had this massive gush of what i thought was very heavy period. I was so nervous to walk home, thinking my jeans must be so heavily leaked through... but also kind of excited to have such a heavy period after years of very light flow... it felt kind of good to have a heavy day. Imagine my surprise when there is no blood at all, and merely very wet knickers... like someone had poured half a cup of sour liquid on them...!!!??? NOT urine. I did a google on this back then, and found a thread with many women discussing this phenomenon that no doctors could shed any light on. Some of them mentioned it happening spontanneously and often, and without warning... and this now filled me with additional dread. Luckily… that never happened again, since.

Anyway… it's now almost November. I never saw that guy again ,because i have no sexual confidence. My previous free and happy sexual self is a thing of the past. He checks in on me once in a while to say hi, and i avoid resuming connection with him romantically because i don't dare let anyone new go near my vagina when it tastes like… a battery?

I really my old 'musky' smell that was white and fluidy, and maybe a little sweet, but smelled sexual and clean. I feel like i now smell sour and sharp at worst, and just 'dead' at best (when there is no sour smell)… dead not in a gross foul way, but in a no-sexual-excitement kind of way. Plus i have no way of knowing when my body with spurt another little teaspoon of this very watery sour discharge. My new sour smell lacks sexual appeal. I'm worried i'm going through early menopause and will never be how I was in the past. I've read when you go through menopause, the taste and smell down there get's very 'strong' … I'm only 35... andmany of you are so much younger than me even… I'm confused. I want ANSWERS!! I'm often in tears and have become very depressed about this. I am very healthy... lots of fresh vegetables and no coffee... barely any dairy... no garlic or onions either (which is a shame, because they can be very healthy)

I recall, in the past… when all was OK down there…i would occasionally… very rarely… get suddenly what i thought was a very oniony smell down there. But never remembered whether i'd just chopped onions recently and couldn't tell if it was from my fingers or my actual discharge. i think it was the discharge, but it only happened very rarely.

Is my body shutting down and going through menopause because i'm not having sex? sometimes i worry i will cause that to happen.

I love sex. I want it. I want to feel free and happy and clean and sexually confident. I'm finally single and ready for a sexually fulfilling relationship with someone, and have ZERO confidence to do so. I don't know what to do.

This thread has given me hope that maybe i will find a cure/resolution, and get back to my normal self. I'm gonna try the pre-seed lube.

It's telling that several of us have this issue post-Flagyl/antibiotics!!!

Also:

- I am NOT on any birth control or other medication.
- I do not have any burning or itching.

Based on all these theories, i wonder if i have Cytolytic Vaginosis, and if i should STOP taking the priobiotics - are they making it worse? Feeding the already-too-much good bacteria?

I wonder about flax seed oil too, which i have in all my smoothies… it has something to do with estrogen levels… i wonder if it's all related?

I have no health insurance… i live i n the US… it costs me $150 every time i go to the doctor, who's not even a gyno.

I'd take a loan out of $10000's if i could fix this issue though… I just don't know where to start.

THANKS FOR LISTENING TO MY VENT… just thought i'd share, in case we together, can build a better picture.

(If i get anywhere, or make any progress, i promise to come back and report it here... i will be very grateful for any of you who do teh same... even years later)

[kkk]

[QUOTE=kkk;329575]Hi, I wanted to post this in case it helps anybody in all the forums I was reading, trying to work out what was wrong with me..

I had a stubborn yeast infection for a couple of weeks - canesten didn't do anything, neither did diflucan. Strangely, 2 swab tests showed no candida, so GP decided I had BV, though the discharge was odourless and symptoms didnt match. Metronidazole seemed to stop the discharge but I was left with a sore, dry inflamed vagina/vulva that no amount of creams or medication would cure. I even tried antibiotics (Amoxycillin) since somehow they cured a yeast infection last year but they didn't help this time. Derma-care cortisone cream, and salt or bicarb of soda baths helped a little but never for very long.

Finally a third (!) swab test revealed ureaplasma urealyticum which is a form of bacterial infection that you need special antibiotics for. I was given Doxycycline 100mg and was sceptical that they would help, since symptoms associated with this are bleeding, pain while peeing, abdominal pains, and discharge. I didn't have any of those. Or, most people have no symptoms at all so I assumed this was just a separate thing from what was causing my inflammation. From reading online, I was sure I most likely had cytolytic vaginosis.

HOWEVER..the doxycycline is working!! Yesterday 12 hours after the first dose I had a noticable reduction in irritation and today I am symptom-free. It feels amazing not to be aware of my inflamed crotch every step I take.


>>Just wanted to provide an update on this. The Doxycycline didn't work in the end, as the soreness came back. And I found that ureaplasma urealyticum is found in just about everybody. I ended up going to a private doctor. To recap, my main symptoms were:

**Constant inflammation around my vagina and where the labia join the vagina. (My doc also noticed slight cervical bleeding. )
**Extreme soreness from pantyliners and sanitary towels, specially during my period
**Not really any discharge at all - very dry and uncomfortable feeling

I went to a private doctor and FINALLY found what it was: GROUP B STREP, and it was eventually cleared with about 10 days of Augmentin. Even after 10 days, I still had some soreness and it was another couple weeks or so till it was completely gone. It appears to have just been caused by the weather turning colder and me being run down. In the end I suffered with it for 2 months and thought it would never ever get better.

Bottom line: I AM CURED! I never had a yeast infection, or BV, and I hope this helps someone suffering with the same soreness as me because group b strep doesn't seem to be something that doctors usually test for.