[r3dh3ad]

The premarin cream for me kinda acted like the clindamycin cream. Seemed like I was a whole lot more irritated with it than without. Mybe I gave up on it too soon but when it seems the my symptoms are worse with something -I can't see the point in continuing it.

[r3dh3ad]

Amelllo- It does sound positive that no white blod cells are present so I would definitely count that as good news! I know what you're saying about not feeling so depressed- I find myself just shaking my head and laughing about just so I'm not crying in frustration 24/7!

[Sarah001]

Hmm nerve damage around the vaginal opening? That kind of sounds like the long standing infection has given you vulvodynia/vulvar vestibulitis, that could be what's keeping your symptoms going. Some women get no discharge with it (like me) and others get alot. I've got some of the lidocaine ointment but haven't tried it yet, my skin seems to flare up with everything I put on it except zinc and castor oil cream so I'm wary of using it. I hope you have success with it and with your routine until January.

[amelillo13]

I know what you mean about not wanting to continue with a treatment that makes it seem worse, R3dh3ad. That's why I am kind of annoyed that the doctor is telling me to continue the Clindamycin cream. It's very weird because it seems like every time I feel like I am at my worst, this doctor keeps saying I am improving, but the discharge and everything has been so bad lately! I don't understand. Either way, I hope the lack of WBC wasn't a fluke thing and that I might actually be on the right track.

Yes, Sarah, I believe he did mention it was probably vulvar vestibulitis. There is one isolated spot at the bottom that hurts whenever pressure is applied, and a little higher up on the inner side burns when touched. He is a vulvar specialist so I don't know why he didn't believe me all the other times I told him or think it could be relevant. The pain with insertion comes and goes, but it's been constant since my last exam in July. I don't know if it was just too rough or what, but hopefully the Lidocaine will help before it gets too bad.

[Sarah001]

Hope so. I'm having problems with decreasing my pelvic floor spasm, each time the exercises seem to be going well and I feel like I'm doing them properly I loose all stability in my hypermobile pelvic joints. In one sense it's proof that the pelvic floor problem came first (didn't have any flare ups while it's been super tight) but it's not helpful that my joints move too much and encourage all the spasm to return. It's a catch 22 situation for me so I'm eager to get to my next physio session and ask for ideas about it. It's not until Sept 13th though so in the meantime I'm struggling badly!

[lafemelle]

Amelillo, I know you said you have low vitamin D levels but that you take a supplement--how much vitamin D are you taking daily? I was reading a journal article today about the link between vitamin D deficiency and recurring vaginitis, but in order to get rid of the symptoms you would need to get a prescription for a 50,000 IU vitamin D supplement (a typical women's daily vitamin will have 800 IU, so that's a HUGE difference). I always assumed if you were deficient you'd only need a daily supplement, but it looks like they have to give you a major one--have you looked into that?

[ItsASecret]

I was reading a journal article today about the link between vitamin D deficiency and recurring vaginitis, but in order to get rid of the symptoms you would need to get a prescription for a 50,000 IU vitamin D supplement (a typical women's daily vitamin will have 800 IU, so that's a HUGE difference). I always assumed if you were deficient you'd only need a daily supplement, but it looks like they have to give you a major one--have you looked into that?

The journal articles which do studies, do have the biochemical evidence, do have all the right explanations as to why it could work against X disease will completely say they believe that there is a connection between vitamin D and in this case vaginitis. Problem is, the concentration. In labs they can play around with vast concentrations of whatever they feel like that day and suddenly they say oh jeez at 50,000 IU of vitamin D we see some good results. Obviously it is not easy to do that in real patients because it can really be dangerous to suddenly put that much of anything into you. By definition you could be 0.0x mg/kg below the average and you could be considered deficient so places will say oh boy oh boy just take a large dose and you will be cured!. But it is not that simple. Major doses are common for countless ailments and often there is science to back it up. However many higher concentrations can cause more problems than benefits but some places do not want you to know this which is why journals publish it to the public. I mean taking 50 times the regular dose, that should raise some eyebrows even if a person does not know much about what they could be taking. So the reputable media like research journals inform the population that it is a bitter sweet type situation. Basically they are saying we might be onto something here with vitamin D and vaginitis but the catch is you need a prescription cause it is 50 times the dose that we normally recommend a person to take, we will not guarantee anything but we hope it works out for you.

[amelillo13]

Amelillo, I know you said you have low vitamin D levels but that you take a supplement--how much vitamin D are you taking daily? I was reading a journal article today about the link between vitamin D deficiency and recurring vaginitis, but in order to get rid of the symptoms you would need to get a prescription for a 50,000 IU vitamin D supplement (a typical women's daily vitamin will have 800 IU, so that's a HUGE difference). I always assumed if you were deficient you'd only need a daily supplement, but it looks like they have to give you a major one--have you looked into that?

Whoa, that's a ton. I've been taking 800 iu daily for 3 months. I'm going next week to get my levels rechecked. I don't know the exact numbers on what they were previously though. I just got a note from the doctor's office that said Vitamin D was abnormal, start on 800 iu daily, recheck in 3 months. My vulvovaginal specialist guy has said there could be a link between the deficiency and BV, but didn't say anything more than that.

Honestly, if I'm starting to get better at all, if it turns out my levels are back to normal, I attribute it more to the Vit D than the Clindamycin. It's the only thing I've been doing differently the past three months.

[lafemelle]

The journal articles which do studies, do have the biochemical evidence, do have all the right explanations as to why it could work against X disease will completely say they believe that there is a connection between vitamin D and in this case vaginitis. Problem is, the concentration. In labs they can play around with vast concentrations of whatever they feel like that day and suddenly they say oh jeez at 50,000 IU of vitamin D we see some good results. Obviously it is not easy to do that in real patients because it can really be dangerous to suddenly put that much of anything into you. By definition you could be 0.0x mg/kg below the average and you could be considered deficient so places will say oh boy oh boy just take a large dose and you will be cured!. But it is not that simple. Major doses are common for countless ailments and often there is science to back it up. However many higher concentrations can cause more problems than benefits but some places do not want you to know this which is why journals publish it to the public. I mean taking 50 times the regular dose, that should raise some eyebrows even if a person does not know much about what they could be taking. So the reputable media like research journals inform the population that it is a bitter sweet type situation. Basically they are saying we might be onto something here with vitamin D and vaginitis but the catch is you need a prescription cause it is 50 times the dose that we normally recommend a person to take, we will not guarantee anything but we hope it works out for you.

I was reading in medical journals about this, and there was one study where 4 women with DIV (what I'm currently being treated for) were given 50,000 IU daily of vitamin D after determining they were deficient, and all 4 women saw their long-term, recurring symptoms completely clear up--and that they never returned as long as they kept their vit. D levels in the normal to high range. I understand no system, especially involving supplements, is perfect, but for us women who have dealt with this for years and have almost no hope left, we've got to cross our fingers that it could be solved with something like this...

[ItsASecret]

I understand no system, especially involving supplements, is perfect, but for us women who have dealt with this for years and have almost no hope left, we've got to cross our fingers that it could be solved with something like this...

Absolutely, and vitamin D is quite honestly such a simple answer if it is going to be cured. Just make sure if you are to follow through with something like this that you talk with your doctor about what else can happen to your body with a 50,000 IU dose.