[RainboWarrior]

I have symptoms that seem to be like Restless Genital Syndrome, but not entirely. I'm wondering if anyone knows of something else it could be:

Basically, I get overwhelmingly aroused on a daily basis. It gets ridiculously distracting to where I have to drop whatever I'm doing and masturbate. Like, I've been late for work/school because of it. Only problem is achieving an orgasm doesn't do anything. It actually makes me more aroused. It doesn't provide any relief at all. Literally as I'm having an orgasm, I start to feel this desperate feeling like I need to orgasm again. Kind of like I orgasm without the "coming down" part, if that makes sense. So I'll keep trying ... and it usually takes me at least two hours to finally give up. So it's been taking up, on average, two hours every single day. Not fun. A friend of mine suggested that maybe I'm not having an actual orgasm, but I'm pretty positive I am.

This sounds like Restless Genital Syndrome, but I don't have a lot of the symptoms that are apparently supposed to accompany it. I don't feel the urge to urinate, I don't have spontaneous orgasms, I don't really feel on the verge of an orgasm (more just an annoying tingling sensation, usually in me rather than around my clitoris), and I usually do start longing for sex when it happens. Masturbation is enjoyable for me until I orgasm, and then it's just frustrating.

I'm on antidepressants (have been for a few years), so I'm wondering if it has something to do with them. I went off of them for a year and the symptoms got worse. Now that I'm back on them, they're the same as when I was off them.

Anyone have any idea what it could be? Also, any idea what I should do? I don't really want to go to my doctor, because if it is Restless Genital Syndrome, I'm afraid he won't even know what that is and just brush it aside or something.

[Trixareforkids]

If you don't mind my asking what antidepressants are you on, because they gave me one that I can't remember but would recognize if I saw it, to TREAT Restless Limb Syndrome (arms/hands & legs for me) and it made it WORSE. I go in cycles and it'll bug me for a week or so at a time and then go away for a couple of months then come back. With the meds it didn't go away. I stopped the meds and it went back to it's previous patterns. I haven't taken any other meds for it because from what I read the meds they use, when they stop working can leave you worse off before.

I find my RLS gets worse the more tired I am, and if I get chronically tired it triggers a new cycle, so I'd ask how your sleep is and if you can do anything to improve it. I'd not heard of RGS before not all people experience all the same severity or the typical pointers to an issue/ailment, have you talked with your GYN/urologist about it?

[Trixareforkids]

---

Have questions about egg vibrators?

We have more answers!

Read our review, “The Best Egg Vibrators: Love Eggs That Will Hatch Massive O’s” here:

https://www.womens-health.com/best-egg-vibrators

---

Sorry, got this stuck in my head, RLS is bad enough, I can't imagine what you're experiencing. Others on here have talked about a buzzing type feeling, you might see if you can find that post, it might have something in it for you, I'm afraid I have no idea of the post title, sorry.

I know with RLS if I try to stretch or massage the muscles it just gets worse, I can't help but try anyway when it's really bad though. If it were internal as you're describing and having a clit O didn't help I'd be trying an internal vibrating rocket/egg to see if I could cancel out the internal the tingling with vibrations from the source. Also, you said you're late for things, not that you had to stop in the middle of them and excuse yourself, so is this mostly a morning thing? Have you had to stop and leave school/work/social activity or is the distraction of whatever you're doing enough to keep it at bay? The reason I'm asking is that I can be dead tired and twitchy as all get out, but if I'm reading (my RLS manifests mostly at night and more so when trying to relax) it's dormant, but the second I put my book down and start to drift off, if my mind wanders at all twitch twitch twitch. It gets so bad at times that I have to get out of bed and can't even try to sleep for hours if at all and is at it's worse when laying/trying to sleep. Hubby says it stops the second I fall asleep. So, I'm wondering if you can distract yourself enough does it lessen enough that you can ignore it.

[Motorguy]

I have symptoms that seem to be like Restless Genital Syndrome, but not entirely. I'm wondering if anyone knows of something else it could be:

Basically, I get overwhelmingly aroused on a daily basis. It gets ridiculously distracting to where I have to drop whatever I'm doing and masturbate. Like, I've been late for work/school because of it. Only problem is achieving an orgasm doesn't do anything. It actually makes me more aroused. It doesn't provide any relief at all. Literally as I'm having an orgasm, I start to feel this desperate feeling like I need to orgasm again. Kind of like I orgasm without the "coming down" part, if that makes sense. So I'll keep trying ... and it usually takes me at least two hours to finally give up. So it's been taking up, on average, two hours every single day. Not fun. A friend of mine suggested that maybe I'm not having an actual orgasm, but I'm pretty positive I am.

This sounds like Restless Genital Syndrome, but I don't have a lot of the symptoms that are apparently supposed to accompany it. I don't feel the urge to urinate, I don't have spontaneous orgasms, I don't really feel on the verge of an orgasm (more just an annoying tingling sensation, usually in me rather than around my clitoris), and I usually do start longing for sex when it happens. Masturbation is enjoyable for me until I orgasm, and then it's just frustrating.

I'm on antidepressants (have been for a few years), so I'm wondering if it has something to do with them. I went off of them for a year and the symptoms got worse. Now that I'm back on them, they're the same as when I was off them.

Anyone have any idea what it could be? Also, any idea what I should do? I don't really want to go to my doctor, because if it is Restless Genital Syndrome, I'm afraid he won't even know what that is and just brush it aside or something.

Here you go some information for you on this disorder I hope this helps you good luck.


Persistent genital arousal disorder (PGAD), originally called persistent sexual arousal syndrome (PSAS) and also known as restless genital syndrome (ReGS or RGS),[1][2] results in a spontaneous, persistent, and uncontrollable genital arousal in women, with or without orgasm or genital engorgement, unrelated to any feelings of sexual desire. It was first documented by Dr. Sandra Leiblum and Dr. Daniel DeCleats in 2001,[3] only recently characterized as a distinct syndrome in medical literature with a comparable counterpart increasingly reported by men.[4]

Some physicians use the term Persistent Sexual Arousal Syndrome to refer to the condition in women; others consider the syndrome of priapism in men to be the same disorder. Priapism is a recognized diagnosable medical condition by the Diagnostic and Statistical Manual of Mental Disorders IV, whereas PGAD is not.[4][5] The disorder has been newly included in DSM-5, which was released in May 2013.[6]

In particular, it is not related to hypersexuality, sometimes known as nymphomania or satyriasis. (Hypersexuality, nymphomania, and satyriasis are also not recognized diagnosable medical conditions by the DSM-IV.) A lack of seriousness in society regarding the human reproductive system downplays the intense pain of the sufferer.[citation needed]

Contents [hide]
1 Symptoms
2 Possible causes and treatment
3 See also
4 References
5 External links
Symptoms[edit]
Physical arousal caused by this syndrome can be very intense and persist for extended periods, days or weeks at a time. Orgasm can sometimes provide temporary relief, but within hours the symptoms return. The return of symptoms, with the exception of known triggers, is sudden and unpredictable. Failure or refusal to relieve the symptoms often results in waves of spontaneous orgasms in women and ejaculation in men. The symptoms can be debilitating, preventing concentration on mundane tasks. Some situations, such as riding in an automobile or train, vibrations from mobile phones, and even going to the toilet can aggravate the syndrome unbearably causing the discomfort to verge on pain. It is not uncommon for sufferers to lose some or all sense of pleasure over the course of time as release becomes associated with relief from pain rather than the experience of pleasure.[7][8] Some sufferers have said that they shun sexual relations, which they may find to be a painful experience. The condition may last for many years and can be so severe that it has been known to lead to depression and even suicide.[9][10]

A Dutch study has connected PGAD with restless legs syndrome.[11]

The prevalence of PGAD is unknown but based on a Dutch study there are at least 7000 cases worldwide.

Possible causes and treatment[edit]
There is not enough known about persistent genital arousal disorder to definitively pinpoint a cause. Medical professionals think it is caused by an irregularity in sensory nerves, and note that the disorder has a tendency to strike post-menopausal women, or those who have undergone hormonal treatment.

Some drugs such as trazodone may cause priapism (which is a recognized medical condition, unlike PGAD) as a side effect,[12] in which case discontinuing the medication may give relief. Additionally, the condition can sometimes start only after the discontinuation of SSRIs.[13] In some recorded cases, the syndrome was caused by or can cause a pelvic arterial-venous malformation with arterial branches to the penis or clitoris; surgical treatment was effective in this case.[5]

In other situations where the cause is unknown or less easily treatable, the symptoms can sometimes be reduced by the use of antidepressants, antiandrogenic agents, and anaesthetising gels. Psychotherapy with cognitive reframing of the arousal as a healthy response may also be used.

More recently, the symptoms of the condition have also been linked with pudendal nerve entrapment. Regional nerve blocks and less common surgical intervention have demonstrated varying degrees of success in most cases. There is, however, no evidence for the long-term efficacy of surgical intervention.

In one recent case, serendipitous relief of symptoms was noted from treatment with varenicline, a treatment for nicotine addiction.[14][15]

[CHANDLERS WISH]

Love it when members go out of their way to research and try to help a new member. Thanks.

[Motorguy]

Love it when members go out of their way to research and try to help a new member. Thanks.

It's my pleasure your welcome.

[RainboWarrior]

To answer both your posts:

I'm on Celexa (citalopram; 40mg if that helps). It does seem to go in a cycle, where every few months I'll have a period of a week or so where it's really terrible and I can hardly stand it. Most of the time it's always there, and then varies in degrees of intensity.

I literally have to stop what I'm doing and take care of it. I've had to leave class because the feeling gets too overwhelming and I can't concentrate. Sometimes distracting myself will help for awhile, but eventually it just builds and I can't stand it anymore.

I don't have a gynecologist right now. Never had to go to one (I'm 20). I guess I could go to my doctor and then get referred to one ...

[Trixareforkids]

You don't need a referral for a GYN you can just make an appointment, thanks to newer health care laws.
Watch those cycles, see if there's anything in common with when they start, eating habits, sleeping habits, stress levels. Celexa wasn't the med they gave me, I looked it up and found it, it was bupropion. Ok, so what other than clit stimulation have you attempted? Have you done any internal stimulation? And if so with vibrating or non-vibrating toys? Test and pay attention to as many things in your life/body as you can so you'll have more information for the doctor when you go.

[RainboWarrior]

You don't need a referral for a GYN you can just make an appointment, thanks to newer health care laws.
Watch those cycles, see if there's anything in common with when they start, eating habits, sleeping habits, stress levels. Celexa wasn't the med they gave me, I looked it up and found it, it was bupropion. Ok, so what other than clit stimulation have you attempted? Have you done any internal stimulation? And if so with vibrating or non-vibrating toys? Test and pay attention to as many things in your life/body as you can so you'll have more information for the doctor when you go.

Good! I'll have to make an appointment with a GYN then. Thanks

I have done internal stimulation, but I already have a lot of difficulty having an orgasm (partly because of my meds, I think), so it doesn't really help. I've tried with both vibrating and non-vibrating toys. I'm starting to keep track of the cycles based on my stress level, but I think I'll add in eating habits and sleeping habits too ... Hopefully I can figure out what's going on if I do that!

[Trixareforkids]

Good luck! Sounds like you're doing just about everything you can, hope you can get it figured out and manageable soon.

P.S. I just noticed that you're in Canada, the referral for GYNs might be different there, sorry