[Kels08]

He has never showed the annoyance and the attitude with me before. He hasn't had a seizure since the meds got upped. He said some things that honestly made me tear up.

[Euphoric]

He doesn't know what he's saying, I promise you from the bottom of my heart. The meds are screwing with the neurotransmitters in his brain. The "normal" lines of communication his brain has with it's functioning parts are kinda like a car that has broken down and is in the shop for repair. The nerve uptake inhibitors are being tweaked with medicines they're not used to. If you put water in your gas tank, your car wouldn't run until the water was removed and the system flushed out. Right now, as per the comparison, he has a mixture of water and gas and his system is undergoing treatment to remove (redirect uptake inhibitors) Goofy comparison, but maybe it'll help. Try to get him pumped full of water. Is there anyone who can stay with him while you are at work. Getting fluids in him every hour is important. If you have people offering help, take them up on it. You'll need some relief yourself, and that doesn't and won't make you a bad person. But breathers are necessary for the sake of sanity.

I can't stress upon you enough that he doesn't know what he's saying or how he's acting, period. All I can do is help educate you and share with you what i do know. It hurts when he says stuff, but TRY to let it roll off. He really doesn't know.

[Kels08]

His older sister is going to come over and help while I am at work. I think he had a seizure in his sleep tonight and he woke up and puked =/

[Euphoric]

I'm no doctor, so this is merely my opinion, but it may be time to take him to the ER for IV fluids and drug monitoring. IMO, something is off, you should be seeing mild improvement, nothing drastic, but mild improvement. It sounds like his condition is deteriorating. If you think he is fine for the night, you should call his neuro again in the morning. Explain again that he is sleeping 24/7 and is talking out of his head (and he is according to what you posted earlier.) It sounds like he is dehydrated and his titration rate was too high. If you've tried getting liquids in him, and you have, he is still not getting enough. His electrolytes are probably depleted as well.
KEEP ME POSTED!

[Euphoric]

Kels,

I know you have your hands full and by all means I don't want to stretch you thin. I was hoping you had some positive news for us. Thinking about you.

[Kels08]

Sorry i am just now updating. He was walking back to our bed and basically passed out so i had to call 911 and he was severely dehydrated and has a concussion because i couldn't get to him in time last night. His nuro backed him off a little on the meds but said next week to go back up to the dose we were on.

[Euphoric]

Yikes, I was afraid that was the case when you said he was sleeping 24/7, ate a little, puked, and was talking out of his head. Hopefully they gave him several bags of IV fluid and he is feeling a little better. If possible, start keeping a journal of his water intake, (Bottled water has fluid oz's at the bottom. Keep refilling it and log each time it's filled and emptied to have a fairly accurate number.) eating habits, and overall disposition. Again, baby, I'm no doctor and his neuro. is WAY more qualified than I am, but giving his dr. as much information about your BF as you can will help with dosage adjustments. I'd hate for your BF to be titrated up too quickly again.

Having someone with him around the clock as much as possible to help remind him to drink water, suggest eating small portions more frequently, etc. will aid his progress. You are doing well staying grounded and making sound decisions.

I'd like to make a suggestions about what you've experienced so far, mainly concerning the hurtful things he said. I still promise you he doesn't have a clue. Have you ever said or done something you would give anything to take back if you could? Normally, we don't forget things that painful. It's up to you whether or not you mention his actions/words to him. I'm in NO way suggesting you video the episode for proof, but if you did and he saw what happened while he was incapacitated, it would probably haunt him, much the way you'd like to erase whatever past experience made you feel that way. For the record, personally, I'd only mention it if he started having uncontrollable anger issues and you needed to reason with him.

Thanks for updating, I had a bad feeling about this last night when I suggested the ER. Please keep me abreast of the situation. I'm thinking about you.

Euphoric

[Kels08]

He is still sleeping a lot so far today and I am having to wake him up and make him eat and drink. Also apparently he has gone from 185lbs to about 175lbs over the past two weeks and that honestly has me concerned.

[Euphoric]

I don't want to get too personal or ask you to reveal anything you're uncomfortable with, but if you don't mind sharing which med he is taking, I may can add a little insight. Good girl for waking him up and making him take fluids and foods. I'm proud and impressed with how you've taken charge. That's no easy feat and unless a person has been there, it's hard for them to understand the undertaking you have assumed. Although you are experiencing bumps in the road along the way, (more like sinkholes at this point) you are doing a phenomenal job. Be proud of yourself and know that I'm staying with you through this.

[Kels08]

He is on Keppra, Topamax, diazapam ( sp? ) Thanks I love him so much and will stick with him through this.